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Sorry to be such a needy one, please FAmily, need prayers. Just got scary news about our 5 yo grandson.

Backstory: He suddenly started limping 6 days ago. No pain. Nothing happened. Weird. I was pretty sure it could be transient synovitis. Mom took him in today. Got blood work and xray. I pray the lame hospital here got it wrong, as they do a lot, but they say Legg-Calve-Perthes. He is on the way to a children's hospital further upstate. 🙏🏻

Here is a video of his limping🥺

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Legg-Calve-Perthes (LEG-kahl-VAY-PER-tuz) disease is a childhood condition that occurs when blood supply to the ball part (femoral head) of the hip joint is temporarily interrupted and the bone begins to die.

Transient synovitis (sin-oh-vie-tis), commonly called irritable hip, is the most common cause of limping in children. It is due to inflammation (swelling) of the lining of the hip joint. In most cases of irritable hip, your child will have recently recovered from a viral infection.
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Sharing. Grandson is being a little trooper. Finally got into a room. His dad is on a business trip & so worried so he did thumbs up for him. So brave. God love him!❤️ 🙏🏻

2 teenagers came in on stretchers. Cut themselves on purpose. Probably mental due to the covid plandemic lockdown would be my guess. They made quite a scene and therefore delayed grandson getting his room. Yikes.

1 Grandson went back to school(preK)Tues. Loved it. Went in stroller "Offroad Bob". Teacher made special parking spot. Goes to storytime on rug etc w/ other kids much as possible. Dad went w/ him. Aide took GS to do errand so teacher showed video dad found to teach kids abt Legg-Calve-Perthes disease.

youtu.be/4x5ZBTvNsI8

1 of the girls heard video mention blood to hip so she grabbed my son's hand&looked him in the eyes and said, Coach D, he can have some of my blood if he wants😭

Cont'd

2 Son & DIL coach GS teeball team.

Gonna let him hit off tee and have someone else run. I told them ask him what he wants to do! Dad wants him to hit from stroller. Mom does not. Let him choose! As much as possible. I feel like stroller is less independent than wheelchair. Mom is bugged by wheelchair, because that is an instant disabled label. Still as independent as possible is best. I get it. It's tough! Crushing!

Next I'll tell about ortho visit today.

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3 Dr happy w/ the mobility he still has. We have exercises to do 3x a day. Didn't get a good vibe. He only does 3 maybe 5 perthes cases a yr. Basically said limited movement, no impact like we"ve been doing, no bracing at this time, short walks, basically what we've been doing.

Also said it didn't seem like it would take a yr in a wheelchair. Thinks the bone will start to heal before a yr 🙏🏻🙏🏻🙏🏻.

Will not see him again, have the name of a really good dr at CHOP. SO WE PRAY🙏🏻

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SHORT UPDATE on grandson: He is very upbeat and tolerating the restricted mobility he has to endure pretty well with constant reminders.

Got appt with CHOP, is set for June 29. Please continue to pray for him and that his Legg-Calve-Perthes disease will reverse and begin to heal before they predict it will and that his new doctor will be good and help him and give peace to his parents as they navigate this scary and uncertain path for their son. Thank you all so much FAmily! ❤️

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Good morning FAmily! Please continue to pray for my grandson Landon❤️. He has his CHOP visit with his new Dr at 8:15 this am 😑🙏🏻 They have arrived😢 Mom and dad are on it! They have their questions all written up with pen and pad ready.

God, Thank you for our many blessings. Please give good treatments, good predictions and complete answers today for sweet Landon and heal him rapidly, Lord. Please be with mom and dad and give them strength, patience and support. Amen

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OMG FAmily! We got the BEST news from CHOP. Dr thinks Landon's in stage 3 which is the healing phase. WHAT? THAT DOES NOT HAPPEN! 😱

He still should do low impact but can walk and ride a bike and be a kid.

If he starts to hurt then things could change but at this time no treatment needed at all. Still do PT mobility exercises. Recheck in Oct. Can go to school not in a stroller. OMG. 😁😭😭😭😁

Praise God! I'm elated! It's truly a miracle! I'm so emotional right now! Thank you all soooo much! ❤️🙏🏻

@KarePatriot

Continued prayers for your precious grandson and family! ☦️ 🙏🏼 ❤️

@KarePatriot

Thanks for the reminder link. I do remember reading this. I had just forgotten about it.

Praying for Landon (same name as my oldest grandson). 🙏🏼 💙

@Truther Thanks so much! So much going on it is hard to keep it all straight. Landon's are fierce and strong and so sweet. 🙂❤️

@KarePatriot

Kare, this is excellent news!!! Prayers have been answered. What a huge burden lifted from all of you and him now being able to play, albeit carefully, like he should be able to.
So happy for you!!! ❤️❤️❤️
God is so great!! 🙏🏻✝️🙏🏻

@KarePatriot

Such incredible news! 🙏 💞
May his healing continue.

@KarePatriot

Wow! Such miraculous news! I am so happy for you and him. ❤️

@KarePatriot

He is on the mend. Better frame of mind. Thanks for asking. ❤️

@itouchu Fantastic! I hope that means he is "over the hump"! Praying for his continued improvement in all things! 🙏 🤗

@KarePatriot Such excellent, joyous news, Kare! 🙌🏻 May he continue to heal.❤️🙏🏻❤️

@KarePatriot

Kare, there could be NO better news!!
Praise God, and God bless that sweet boy and all who love him.

@KarePatriot

What fabulous news ❤️ ❤️ ❤️ !! So happy for you and your grandson ... prayers that the healing continues 🙏

@KarePatriot

I’m overjoyed (tears and all) Glory to God in the highest!!! Amen Amen Amen 🙏🏼

@LeaTXlrp Thank you, sweet friend! I'm so thankful and so happy and relieved. It is truly a miracle! 😌

@KarePatriot

What wonderful news! We are so happy for Landon and your family.

@gloriaoils Thank you. 😊

How are your sinuses? I hope you're feeling better today! 🙏

@KarePatriot
Aw, how sweet. I got some better sleep last night, so am feeling a bit better, thank you.

@gloriaoils Oh good! Sleep is vital to getting better and lots of water! Hope you're on the other side of it then. 🙏 🤗

@KarePatriot Praise God!! CHOP is the Best, my sister worked there for 15 yrs.
I'm praying for your brave little man!

@Pinkbeachlady Thank you so much! I'm so thankful for your prayers and caring! I'm a definite fan of CHOP and the Dr. It was amazing they got an appt so fast too! Unheard of! 😌

@KarePatriot
Yes!!!!! 🎉🎉🎉🎉
God bless little Landon and your beautiful family! 🙏♥️🙏♥️

@KarePatriot

Fantastic!
Thank the Lord!
Wonderful news.

Will keep on praying. Sending you, your grandson and family love, prayers and joy.

@SweetIceTea Big thank you for all your prayers, encouragements and well wishes! So grateful! 💕 🤗

@SweetIceTea Oh, trust me, me too, over here! I'm about to break out a celebratory mango Chipotle margarita LOL 🍹 😋😛

@KarePatriot Ohhhhh, that sounds good. Please share recipe!!! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 @SweetIceTea

@KarePatriot @SweetIceTea

This is for one serving, correct?
😇🤪😇🤣🤫😇😂
Thank you!!! 🤤🤤🤤

@3SEAS NO It makes LOTS of pitchers! I'll try and bring down to a single. BRB

@SweetIceTea

@KarePatriot Lol. I know. I can break it down. Was trying to make myself look like a lush… you’re good!! Thank you for sharing! Will definitely make it! @SweetIceTea

@KarePatriot PRAISE G-D! I told you CHOP would take great care of him!
So GRATEFUL to hear this news for that precious child!!!!

@Bakerfiend Thank you so much, Sweet lovely Bakerfiend! I'm so amazed at how prayers were answered today for our precious Landon 💗 😃 Blessed!

I'm thinking about you and hoping you're doing okay. I know you're thinking about and missing your dear sister Betty! She is looking down on you and no doubt is so proud of the beautiful loving strong person her sister is! Love and comfort to you, my friend! 🙏🏻❤️

@KarePatriot Thank you, Betty had such a great sense of humor and boy could she play the flute and the violin. I suspect she’s playing in Heaven.

@KarePatriot

Best news I've heard! God bless him. Prayers for his continued healing. 🙏❤️

@hejoural I'm still pinching myself! Such an amazing miracle! Thank you for your prayers! 😁 ❤️🤗

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